Wednesday, April 23, 2014

Perianal disease: A timeline PART 3

This is the third entry in a four-part series on my perianal disease timeline, including the healing after my proctectomy. Part 2 can be found HERE.

2-4 months following my Proctectomy (Mid-December 2013 - March 2014)

The second month saw more healing, which was very nice to see.  Sitting was becoming more comfortable with the VAC unit, but prolonged sitting was still a challenge.  I purchased a gel seat cushion, like the one's you'd find for your vehicle, and used that during the day.  It was recommended to NEVER use a doughnut cushion.
Purchased mine from Canadian Tire.
This photo shows what the inside looks like.

Blogger Tricks

Tuesday, April 22, 2014

Perianal disease: A timeline PART 2

This is the second entry in a four-part series on my perianal disease timeline, including the healing after my proctectomy. Part 1 can be found HERE.

Surgery and the First month (Nov 7, 2013 - early December 2013)

Monday, April 21, 2014

Perianal disease: A timeline PART 1

"Ken doll butt".
You'll get the joke soon. 
This will be the first entry in a four-part series on my perianal disease timeline, including the healing after my proctectomy. I'd like this series to be as educational as possible, so there will be graphic photos.  I will keep the photo's hidden, but will link to uncensored versions.  The healing timeline file I've put together will be available for download in PART 4, but feel free to contact me if you need higher-quality photo's (especially if you are a med student, nurse or MD). 

Monday, April 14, 2014

Blockages: Fool me twice, shame on me

Mistakes were made.  I admit it, but if I don't learn from those mistakes then I'll continue to suffer needlessly with blockages.  It was just over a week after I written about having partial blockage with my ostomy that I experienced what a full-blown, "get your ass to the ER" type blockage feels like, and I'll be sharing that experience with you today.

Tuesday, April 8, 2014

GUTSY Goal achieved - But the fight isn't over!

Durham Region Top 10, April 8, 2014

I want to thank everyone who has donated to help sponsor team VeganOstomy for this year's GUTSY Walk so far.  We've surpassed our original goal of $500 in less than two weeks, but every extra dollar is a chance to help find a cure, so please continue to get the word out.

In just this past week, over 10 million dollars was given to help fund a new study, which hopes to uncover the genetic, environmental and microbial causes for Crohn's Disease.   $4 million of that came from the Crohn's and Colitis Canada, and it's through events like the GUTSY Walk that they are able to support major research projects like that one.

The walk comes in just over two months, and I've already been preparing to get my legs in shape for the big day.  My joints may still hurt, but that isn't going to slow me down.

For more information on the GUSTY Walk, or to make a donation, please visit:  Team VeganOstomy's page or http://gutsywalk.ca/







Tuesday, April 1, 2014

Those damn blockages...

Yesterday, I had a pretty normal morning... emptied my pouch at 7am and then again at 10:30am.  For brunch, I had some leftover rice with avocado, followed by two medium-sized apples.

My stoma is usually pretty inactive in the afternoon, but when 4pm rolled around and there was no output in my pouch, I knew something was up.  I started getting abdominal cramping soon after and with a few stoma "farts", I still couldn't get anything to move.  I finished 2L of water and began massaging my belly until around 10pm.  At that point it had been almost 12 hours since I last emptied my pouch and there was only a little output in my bag, so I went onto Plan B.

Thursday, March 27, 2014

Featured guest post on the Crohn's Forum Blog

I'm honored to have been asked to write a guest blog post for the Crohn's Forum Blog.  I'm an active member of their support forums, and I love interacting with all the wonderful IBD'er and ostomates there. My post illustrates several lessons I've learned from having Crohn's Disease, and I hope that by sharing them with the community, it allows others to cope with their illness too.

You can read the post on the Crohn's Forum Blog.

Thank you, Helena, for the wonderful opportunity to give back to the IBD community.

Wednesday, March 26, 2014

Time to get GUTSY!


This year I have a chance to fight back against Crohn's and to show that I still have plenty of fight left in me. Along with my daughter, Jasmine, I'll be participating in this year's Gutsy Walk, presented by Crohn's and Colitis Canada on June 8th, 2014.

Thursday, March 13, 2014

Grandma's Hands ostomy pouch cover - REVIEW

Many ostomates feel more self-conscious about their body than the average person.  Sometimes we use special clothing, wraps or products like the Stealth Belt to boost our comfort and confidence, but many of us feel most comfortable when we keep things simple.  An ostomy pouch cover can help, and today I'll be reviewing two from Grandma's Hands.

Wednesday, February 26, 2014

My Ostomy travel kit - Feb, 2014

Inspired by another fellow blogger (Behind the Times by Stephen Dempster), I've decided to finally get a proper EDC (everyday carry) bag for my ostomy supplies.  This new bag is replacing a MUCH LARGER tactical shoulder bag, which I may still use for hikes or whenever more supplies are needed.